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Living With and Beyond Cancer – a James Lind Alliance Priority Setting Partnership

Do you have questions about living with and beyond cancer that you would like answered by research?

People are now living longer after a cancer diagnosis; more people in the UK are living with or beyond cancer. But many people, including carers, are not living well. More and more people are living with impacts of cancer and its treatment.

A lot of research is looking for new cancer treatments, but there’s not enough research relevant to living with and beyond cancer. Research is only effective when we know what questions we want answered. There are so many possible avenues of research that we need a way to decide which is the most important.

The National Cancer Research Institute* (NCRI) is bringing researchers together to collaborate and find ways to answer research questions that should help people live better with, and beyond, cancer.

The first stage of this project is a Priority Setting Partnership. A Priority Setting Partnership brings together patients, carers, and health and social care professionals to work out what are the most important questions for researchers to answer. Your experience of living with and beyond cancer is needed.


Tell us the questions for research & help us to improve the lives of people affected by #cancer #NCRI_LWBC


Are you a cancer patient first diagnosed as an adult?
Do you look after or have you looked after people who were first diagnosed with cancer as adults?
Are you a health or social care professional or a volunteer working with adults affected by cancer?

Have your say on the future of research relevant to living with and beyond cancer by completing the National Cancer Research Institute survey at share the survey with your community, family, friends and colleagues and encourage as many people as possible to share their views.

The survey deadline has been extended to 15 November 2017. You can find out more about the project at

If you need to complete the survey on paper, or if you have any other requests, please contact NCRI by emailing, by telephoning 0203 469 6307 (9am to 5pm Monday to Friday or leave a message with your contact details), or mailing LWBC, NCRI Executive, 407 St John Street, London EC1V 4AD.



* HSC R&D Division is an NCRI Partner.
NCRI Partners are organisations that fund cancer research in the UK, and who want to work together to coordinate their research.