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Living With and Beyond Cancer – a James Lind Alliance Priority Setting Partnership prioritisation survey

 
More and more people are living with the consequences of cancer and its treatment - what we have termed Living With and Beyond Cancer. A lot of research is looking for new cancer treatments, but there’s not enough research relevant to living with and beyond cancer.
 
The National Cancer Research Institute (NCRI) and the James Lind Alliance are working on a project to change this. They would like to find out what the priority questions are for research that looks at the consequences of cancer and its treatment (during and in the months and years after it has ended) and how to manage these. They can then work with the research community to start to answer these questions. The NCRI and James Lind Alliance opened a survey last year to collect your unanswered questions for research relevant to living with and beyond cancer. The questions have been analysed and combined into a shortlist.

This survey is asking you to tell them which questions in the shortlist you would like to see prioritised for research.

The top ranked questions (up to 30 in total) will be taken to a workshop in June, where a group of patients, carers and professionals will decide the “top 10” priorities for research relevant to living with and beyond cancer. The top priorities will then be promoted to many research organizations.

Who they want to hear from:

Please complete this survey if you live in the UK, and you
  • were first diagnosed with cancer as an adult (aged 16+), or
  • look after/have looked after someone who was first diagnosed with cancer as an adult, or
  • are a health or social care professional or a volunteer working with adults affected by cancer
 
You do not need to have taken part in the previous survey.
 
For more details see the flyer.  To complete the survey click on the following link: www.research.net/r/CancerQs2
 
Please note the survey closes on 12 April 2018.