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PPI in action

Dawn Small, a research nurse in the Western Health and Social Care Trust, is actively encouraging patients, carers and the wider public to participate in influencing the research cycle to ultimately bring benefit to patient outcomes.

Dawn and her colleagues in the The Joint and Spine Research team have set up 2 Research Advisory Groups in the areas of Ankylosing Spondylitis and Rheumatoid Arthritis with people who attended an information evening held last month.

In these groups people with an experience of Ankylosing Spondylitis and Rheumatoid Arthritis will be able to share their personal insight about the conditions with researchers.

Dr Philip Gardiner, Western Trust Consultant Rheumatologist said: “We are delighted with the excellent feedback we have received from the patients and their willingness to join our research advisory groups. The Research groups are made up of research staff and patients with an experience of the disease who want to be actively involved in the research process. The additional knowledge we gain from patient’s experiences can help challenge assumptions, identify problems and help come up with solutions to ultimately reflect real patient needs.”

 
Download a poster about the Joint and Spine Research Team in the Western Health and Social Care Trust.