If you are a researcher thinking about involving people in your research as partners rather than subjects, we can help you by providing training, guidance around recruitment and access to resources.
Training Workshops
HSC R&D Division in partnership with the Northern Ireland Cancer Trials Centre deliver workshops on Building Research Partnerships.
These workshops are designed for people interested in getting involved in research and researchers interested in involving the public, patients and carers in their research. They use a quality assured train the trainer approach to explore the area of health and social care research as well as the various ways the public can be constructively involved in the research process as partners. They aim to strengthen mutual understanding and working relationships between researchers and the public, and support researchers in developing and delivering quality research that is accessible, acceptable and patient focused to benefit patients and Health and Social Care.
The workshops will help...
people interested in getting involved in research to gain
- An understanding of how the public can get involved in research.
- An understanding of what it means to be involved in research and how patients, carers and the public can be involved at each stage of the research process.
- A knowledge of different types of research methods and terms used in research.
Researchers to gain
- An understanding of how the public can get involved in research
- An understanding of what it means to facilitate involvement in research and how patients, carers and the public can be involved at each stage of the research process.
- An opportunity to share your expertise in research with patients, carers and the public.
Since 2012 twenty one workshops have taken place in Northern Ireland, most recently being held virtually. Following each course, participants were invited to complete evaluation forms.
Evaluation showed that the workshops:
- have enabled capacity building at a local and national level
- have led to a positive learning environment for participants
- have helped to engage a group of professionals and public with a range of conditions and experience
- have helped build partnerships which have the potential to have a measurable impact on practice
Resources
- HRA guidance for Funding Applications - Top Tips for Public Involvement in Research
- HRA Best Practice Principles for Public Involvement
- Two PIER NI members have produced "Insights into PPI for Research Proposals" which you may find useful.
- DirectoryofCommunityNetworks provides a list of organisations who may also be contacted to help you access people in the relevant area.
- Help with Lay Summary from the Plain English Campaign
General Information:
- National Standards for PPI - The standards are the work of a Public Involvement Standards Development Partnership which brings together representatives including public contributors from the Chief Scientist Office (Scotland), Health and Care Research Wales, the Public Health Agency (Northern Ireland) and the National Institute for Health Research (England).
- Involve - Good Practice guidelines
- Engage - a website developed in partnership with staff, service users and carers designed to provide a wide range of information, guides and links to support Personal and Public Involvement (PPI).
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NIHR Research Design Service (RDS) patient and public involvement (PPI) Handbook
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A Recruitment Advert can be used and adapted for your own clinical area to advertise for service users and the public who may be interested in being involved in your area.
- Guide to peer research with young people from one of the Bamford Implementation Commissioned Research Studies "Transitions & outcomes for care leavers with mental health and/or intellectual disabilities" Dr B Kelly (QUB)
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The MRC Clinical Trials Unit at UCL: guidance for researchers on patient and public involvement. and guidance and a template for writing a patient information sheet (PIS) for adult trials, which uses research evidence to ensure that the PIS is clear and easy to understand.
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Chantal Camden et al. 2015: Engaging stakeholders in rehabilitation research: a scoping review of strategies used in partnerships and evaluation of impacts.
- Involve 2012: Briefing notes for researchers and Public involvement in sytematic reviews: Supplement to the briefing notes for researchers.
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Alex Pollock et al. 2015: User involvement in a Cochrane systematic review: using structured methods to enhance the clinical relevance, usefulness and useability of a systematic review update.
- The Health Foundation: Communicating your Research Toolkit
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NCRI / Involve 2010 - Guidance for Chairs
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HSC R&D Division: Strategy for PPI in HSC research