The Northern Ireland Longitudinal Study (NILS) is funded by the Public Health Agency HSC R&D Division, the Northern Ireland Statistics and Research Agency (NISRA) and UKRI Economic and Social Research Council (ESRC) and supported by the Business Services Organisation (BSO).
NILS has been formally available to researchers since the end of 2006. It comprises two major data linkage studies: the NILS and the Northern Ireland Mortality Study (NIMS). These were developed by NISRA and are maintained and managed by them as a resource for research.
NILS
The Northern Ireland Longitudinal Study (NILS) is a wide-ranging database of people and their major life events, stretching back decades. It is proportionally the largest longitudinal study in the UK covering an impressive 28% of the Northern Ireland population and accounting for approximately 50% of Northern Ireland households. The NILS ‘core’ data are drawn from the Health Card Registration data and then linked to data from Census returns (1981, 1991, 2001, 2011& 2021), Vital Events (births, deaths and marriages), Migration and Property data. The result is over 40 years of longitudinal data which is regularly being updated. In addition to this rich resource there is the potential to link further Health and Social Care data via Distinct Linkage Projects.
NIMS
In addition, for a more detailed investigation into NI mortality patterns, the Northern Ireland Mortality Study (NIMS) contains links for the enumerated population of Northern Ireland from the 1991, 2001 and 2011 Censuses to registered mortality data from the General Register Office (GRO). Within this database, there are static Person and Household data sets for each Census link, as well as a linkage table to a Deaths information table. The NIMS database is updated quarterly and currently contains deaths up to September 2020. The NIMS 2011 was due to end in 2021 and it will now be extended to continue to include deaths data post 2021 to allow for ongoing research into the impact of Covid on deaths in NI.
For more information contact NILS