General Information and guidance
- National Institute for Health and Care Research (NIHR): Briefing notes for researchers - public involvement in NHS, health and social care research
- UK Standards for Public Involvement: Resources to support researchers working towards the UK standards
- NIHR Applied Research Collaboration West: A map of resources for co-producing research in health and social care
- NIHR Oxford Biomedical Research Centre: Patient and public involvement (PPI) Researcher Guidance
- National Institute for Health and Care Research (NIHR): A practical guide to patient and public involvement in lab-based research
- Centre for Research in Public Health and Community Care: Useful, practical and evidence-based guidance for providing effective two-way feedback between researchers and public contributors.
- NIHR Learning for Involvement: Tips for researchers involving unpaid carers in health and care research
- Co-Production Collective: PPI and Ethics.
- Healthtalk.org ‘Researchers' experiences of patient & public involvement’. You can find out about the experiences of health researchers of involving patients and members of the public in their research, by seeing and hearing people share their stories on film.
- NIHR: A guide to working effectively wth public contributors - by public contributors themselves
- NIHR: Race Equality Framework
- INCLUDE: Better healthcare through more inclusive research
- NIHR Guidance for Co-Producing a Research Project
Other PPI training
- NIHR Learning for Involvement: Public Reviewers; raising research quality: an interactive course for new and experienced reviewers of health and social care research
- Clinical Research Facility Edinburgh: Bitesize Introduction to Patient Public Involvement - Bitesize Introduction to Patient Public Involvement (ed.ac.uk)
- Cochrane Training: Involving People: A learning resource for systematic review authors
- Trinity College PPI Ignite: PPI introductory module
- Health and Social Care Research Wales: UK Standards for Public Involvement one hour training package
- Public Involvement Training (Imperial College London): This online course will give you the skills and knowledge needed to get started with PPI in research
Webinar recordings
- NIHRtv: Reflections on impact & evaluation of public involvement: Who, Why & What?
- Evidence Synthesis Ireland: Embedding Patient and Public Involvement (PPI) in medical education evidence synthesis
- NIHRtv: How to apply Public Involvement Effectively to your Research Application
- NIHRtv: How to implement a virtual programme for Patient and Public Involvement
- PPI Ignite: PPI in lab-based Research
- All Ireland Institute for Hospice and Palliative Care: PPI within the context of palliative care
Blogs
- MQ Mental Health Research: Shaping Research Through Lived Experience
Advice for funding applications
- HRA guidance for Funding Applications - Top Tips for Public Involvement in Research
- HRA Best Practice Principles for Public Involvement
- Two PIER NI members have produced "Insights into PPI for Research Proposals" which you may find useful.
- Directory of Community Networks provides a list of organisations who may also be contacted to help you access people in the relevant area.
- Help with Lay Summary from the Plain English Campaign
- Cochrane: Consumer involvement – a guide for funding applications
- NIHR: Writing Plain English Summaries
PPI tools: Planning and Impact Assessment
- Public Involvement in Research Impact Toolkit (PIRIT): this consists of a planning tool and a tool to track the impact of public involvement activities within your research.
- Public Involvement Impact Assessment Framework (PiiAF)
- The Involvement Matrix
- Guidance on evaluating PPI in research.
- COMET Patient and Public Involvement Toolkit: This freely available Toolkit helps you plan for and undertake PPI in your core outcome set (COS) study.
PPI Payment guidance
- NIHR Payment Guidance for Researchers and Professionals
- Health Research Authority: ‘Payment for public involvement in health and care research: a guide for organisations on employment status and tax’.
- Health and Social Care Northern Ireland: Service Users and Carers – Guidance on Reimbursement of Out of Pocket Expenses
Benchmarks for effective public involvement
- UK Standards for Public Involvement.
- Health Research Authority Shared Commitment to Public Involvement.
Useful Websites
- NIHR Learning for Involvement: This website is dedicated to learning and development for public involvement in health and social care research: what’s it all about and how to do it well. It brings public involvement information and resources (such as guidance, websites, videos, articles and blogs) and training together in one place.
- Health Research Authority: Public Involvement
- PPI Ignite Network: The PPI Ignite Network promotes excellence and inspires innovation in public and patient involvement (PPI) in health and social care research in Ireland.
- Engage: a website developed in partnership with staff, service users and carers designed to provide a wide range of information, guides and links to support Personal and Public Involvement (PPI).
Examples of PPI Groups
- HSC R&D Division: Public Involvement and Enhancing Research (PIER)
- Northern Ireland Cancer Research Consumer Forum
Examples of PPI Strategies
- HSC R&D Division Strategy for Personal and Public Involvement in HSC research
- Northern Ireland Cancer Trials Network: A strategy for Personal and Public Involvement in Cancer Research
- Manchester Biomedical Research Centre: Patient and Public Involvement, Engagement and Participation Strategy 2022-27
page last updated 13.09.23