UK Regulatory and Access Frameworks Survey
Rare Disease Research UK and LifeArc Centre for Acceleration of Rare Disease Trials are working together to better understand the experiences and needs of the rare disease research community when navigating the UK regulatory pathways and frameworks.
Insights are being gathered from across the four UK nations to build a clearer picture of positive and negative experiences specific to rare disease research, challenges faced when navigating regulatory and governance processes for rare diseases and community needs and priorities for future improvements in rare diseases. This includes the full pathway from regulatory approval to NHS commissioning and adoption, and experience with different bodies across the UK.
Whether you are a researcher, clinician, funder, patient advocate or someone working in health policy in rare disease your opinion matters.
Complete the survey which closes at the end of August by following the link below:
UK Regulatory and Access Frameworks Survey